Finally, its over. I have to admit that I wasn't sure this day was going to happen. Maybe something would change and we wouldn't need to do it after all. Then, when it was originally scheduled, Nora got sick and we had to postpone it. But, somewhere between then and now I felt a new peace about it...confident that we were doing the right thing."I do not know how I am to pray for this childas a mother I don't want my baby deniedbut in the waiting in the waiting I learned
And, I completely underestimated how difficult it would be.
Nora was such a trooper, especially this morning when she kept signing "eat, eat, eat" and probably wondered why Owen was enjoying leftover blueberry pancakes and we wouldn't feed her. How torturous.
On our way to the MRI:
When we finally arrived, she made it pretty clear that she wasn't going down without a fight. They tried to give her medicine to calm her before the sedative, but she just kept screaming for me to pick her up. As I followed them to the doorway and watched them take her in, it felt like my heart was literally being ripped out.
every instinct in me wants to shield her from pain
take the arrows of misery heartache and blame
but in the sorrow in the sorrow I learned to hold on
Because of all the extra sedatives they had to give to her to get her to stay asleep, we had to let her rest longer afterwards. So, I just sat next to her bed, watching her chest rise and fall, overcome with emotion...with relief.
I only have two eyes - be all seeing
I only have two hands - be everywhere
I do not know enough - to be all knowing
I give this baby up into your care
Once I knew she was OK, the worst part of the ordeal was coming out of it. She thrashed and screamed for two full hours, and I was unable to do anything to comfort her. So, I just rocked her, holding her as tight as I could, both of us wet with each other's tears. Finally, with nothing left to give, she relaxed and fell asleep.
It is amazing--when you think you are pushed to your limit and can't handle much more, God gives you the gift of perspective. Those moments that you realize your shoes are the only ones that truly fit, or that despite the heartache and struggles, they are the only pair you would choose to walk around in. While this experience was difficult and scary, I looked around to the other beds filled with kids Nora's age who are battling cancer or who are unable to speak or who have been through this multiple times already. What struck me most were the smiles on their faces, the reassuring nods from their mothers...their peace.
We won't know the results for a few days. But, for now, we are so grateful that this day is over, that she is OK, and especially for all your prayers. We definitely felt wrapped in their peace through this process.
I do not know how, how to pray for this child
I want to guard her from everything wicked and wild
but in the trial in the trial I learned to hold on
And in the trial, in the trial I learned to hold on to the heart of God "
~Sara Groves



















